Tobias & Meningococcal … Update …

Tobias has turned two years old !

I first met Tobias and his mum Katie Moss six months ago when he was nineteen months old … fifteen months after Meningococcal Disease irreparably and terrifyingly changed his little life.

Born to mum Katie and dad Steven, at just four months old Tobias was struck with the deadly disease. Within hours of the onset he had been flown from Cairns to Townsville Paediatric Hospital by helicopter, had both arms, both legs amputated and twice, very nearly, lost his life. The paediatric surgeon said it was the most severe meningococcal case he had seen.

I was introduced to Tobias and mum Katie at a Clifton Beach cafe by photographer colleague and friend of the family Renee Ping in early December. There I broached the idea of visually documenting Tobias’ circumstances to tell the story of the families emotional journey and the challenges they’ve had to overcome in the months since the onset of the disease.

Must admit I was captivated by little Tobias from that first meeting.

Two weeks later the family invited me to their home with my cameras. Coincidentally, Tobias, in the few days prior, had learnt to sit unaided for the first time. I was fascinated to watch and interact with Tobias to make many images … and it was truly inspiring to see how he was developing and learning to adapt without the use of limbs. Tobias can now gently grasp a ball, can burst a bubble, loves splashing in water … and much more. Most impressive was seeing his obvious thought processes on how to try and make things work.

Mother Katie, father Steven and Tobias’s siblings Zakoa, Hunter and Baylee form a remarkable team, brilliantly guiding and nurturing their little son and brother along a most difficult path. I am in awe …

With the pics safely on my laptop I put Katie in touch with gun Courier Mail specialist ‘health’ rounds journo Jackie Sinnerton for the pair to document the story and contacted the Sunday Mail picture editor with the news that I already had the images.

The result ? … a front page pictorial pointer to a nice double page spread story and pics inside, just before Christmas. The Sunday Mail publication played a significant part in raising funds for the purchase of a larger vehicle to transport the whole family to Tobias’ frequent necessary hospital appointments.

None of my images below here were selected in that original publication and have not been ‘seen’ before … so I thought it timely to celebrate Tobias’ third year on the planet by featuring here a few more pics made last December.

Tobias … you rock ! (Huge Thanks also to the whole inspiring family.)

Images © Brian Cassey

Tobias …

… this past week I had the very real privilege and pleasure to meet … and photograph … little twenty month old Tobias and his family.

The story of Tobias is heart breaking and, at the same time, miraculous and inspiring. In August 2024 at age of four months he was struck by the meningococcal disease. Within hours of the onset he had been flown from Cairns to Townsville Paediatric Hospital by helicopter, had lost both arms, both legs and twice, very nearly, his life. Paediatric surgeon Dr Harry Stalewski said he had never seen a meningococcal case so severe.

I learnt of the terrible plight and journey of Tobias from a photographer colleague and family acquaintance. A couple of weeks ago Renee Ping arranged an introduction to little Tobias and his delightful mother Katie to discuss the possibility of documenting the heart-rending story. After conferring with husband Steven the couple came to the decision that ‘it was time’. I put them in touch with health specialist journalist Jackie Sinnerton and arranged to make the images to accompany Jackie’s eventual piece.

The story has now been published in today’s print edition of The Sunday Mail and also online accompanied by some of the many images I made of Tobias and his family during our photo sessions.

I was fascinated to watch and interact with Tobias to make those many images … and it was truly inspiring to see how he was developing and learning to adapt without the use of limbs. Tobias can now gently grasp a ball, can burst a bubble, loves splashing in water, can sit upright unaided … and more. Most impressive was seeing his obvious thought processes on how to try and make things work.

To say I have a huge soft spot for Tobias is a great understatement !

Mother Katie, father Steven and Tobias’s siblings Zakoa, Hunter and Baylee form a remarkable team, brilliantly guiding and nurturing their little son and brother along a most difficult path. I am in awe …

Not wanting to repeat too much of Jackie’s’ ‘words’ in todays issue, may I suggest shelling out the four dollars odd on the printed paper or catching the story, photographs and videos ‘online’ at … https://www.couriermail.com.au/health/how-cairns-baby-tobias-phineasa-survived-meningococcal-to-inspire-his-family/news-story/51711139b6d1179f2ebdef2afec3552a

The top photo is the image that I am most fond of from the hundreds I made of Tobias. However, the paper preferred to go with the other pic that you may see on the screen grabs below of pages 1, 4 and 5.

Oh Yes … the family have to make frequent road trips from Cairns to Townsville for Tobias’s treatment … but their vehicle is too small for all of them. The FNQ Youth Assistance Fund is organising fund raising to finance a larger vehicle. If you can help please donate at … https://www.fnqyaf.org.au/youth-support/donations/ … by selecting ‘Wheels for Tobias’ under ‘Donation Type*’. Thanks !!

Images © Brian Cassey, publication © The Sunday Mail